Elle is slowly getting back to normal. She had a good day today. Her and her nurse stayed home today from school and played, read books and sang. (she LOVES music)
Kaden was great also today. He was 'talking' and smiling and interactive. I hate the days that he is distant and not smiling. Phenobarbital blood level is good. The other day he had to have a 'load' to boost the level up but now he seems to be fine. They also increased his daily dose (evening one only). Today they changed his Ketogenic Diet. They increased the concentration in the formula and increased the MCT oil. His blood sugars have not been great the last couple of days so we are trying to get those more regular so he doesn't have to be 'rescued' (apple juice). Ketones were low today but tonight when I checked them they were 8 (that is good). He also had a really nice student nurse. She is actually the daughter of a nurse that took care of Elle in PSCU when she was in there for nine months!! I thought that was kinda neat!!!
Anyways, I was there tonight and Paul was at home with Elle. Another night apart.......
1 comment:
What a great picture of Paul and Kaden. Was good to see Kaden smiling yesterday. Glad Elle is finally feeling better. I am always worried when my little sweetie isn't feeling well. You and Paul are truly amazing people. We love you both for many reasons, but, right now we love you for taking such wonderful care of our precious grandkids. Take time to take care of yourselves.
Love Nana
Love Mom
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