Kaden came home!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Yesterday afternoon Kaden came home. He had a trial Midazolam dose (2 actually and this is the rescue drug we would use if he had a seizure) to see if he could hand it without causing him distress with his breathing. He did very well. So now we are allowed to give him 1 dose at beginning of seizure and if it does not stop in 10 minutes we are allowed to give another dose (3/4 of first dose) He did well over night except for the fact he was playing from 3am till 6:15am.....He is happy, smiling and laughing....he is just adorable!!!! Some would say abit of a charmer!!!! We are going to have to take Kaden for Phenobarb blood levels every three days to make sure he is maintaining the correct level. He will also have to follow up with the neurologist and his pediatrician. Due to his extensive hospital stays he is also going to have Physiotherapy, Occupational Therapy and Speech come to the house once a month.....Elle had this and there is usually and VERY long wait list to get them to come but we have friends in high places....hehehe....thank you friends at the hospital!!!!! Glad to be home but will miss all our friends at the hospital. Not that Paul or I are in any way wanting to go back but the love those people showed to both our children was amazing........ Anyways we are hoping to keep sickness away so that we can actually participate in Christmas this year!!

Elle is fine. Went to school yesterday (late) and came home by bus. She slept all night but was up early and now is sleeping with daddy upstairs while Kaden and I hang out......