Kaden was more alert today. Yesterday he was very sleepy. He has a wicked butt rash so he had a little 'oxygen therapy'.....which means we take his diaper off and he lays on the bed with a plastic cup that has the oxygen tube stuck through it blowing on his cute little butt!!!! He was so cute laying there. He was rolling onto his side trying to get onto his tummy.....too cute......Paul was with Kaden tonight and he slept the whole time except for about 10 minutes. Just enough time to change his diaper and give a few smiles. He has a 'float nurse' tonight till 11:30.....needless to say she had absolutely no idea what to do. Not too familiar with g-tubes (feed tubes) so Paul had to tell her she needed to clamp it between meds so that the med that was just given doesn't come shooting back out.....AND.....he has a neighbour that is on isolation (you have to gown,glove & mask) before going in......she didn't know anything about being in isolation.....ahhhhhh!!!!!! Kaden better not get sick......anyways we made a call to the charge nurse and he is going to clarify with her what it means.....brutal!!!!! They will be taking a Phenobarbital blood level tomorrow morning along with a blood ketone level and a glucose blood level. His blood sugar has been a bit low so they want to check that. After they check that they will be taking the IV out as its just a source of infection and if its not being used I would rather it be taken out.
Elle is good today. She had a great sleep last night and I had to wake her to get ready for school. She had a nap at school and enjoyed 'special music'!! She loves music. I stayed home with her tonight as I have been at the hospital alot cause we have had extra nursing for her. She had a nice bath and alot of kisses and snuggles.
The above picture is of Elle in the walking system that Paul and my dad made for her to help her learn to walk......
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