Up from the basement.....

Well your all probably wondering where the heck we have been! Kaden has been battling a Gastrointestinal Virus. He has been throwing up since last Friday. He also has a very (shall we say) explosive butt.....which is quite irritated. His throwing up has stopped now and he is just trying to get stronger. He had some smiles for his mommy today but was quite weak and pale looking. His ketones are only 4 due to all the fluid loss/IV fluids given due to dehydration. His Phenobarbital blood level today was.......6o!!!! WOW!!! Way over toxic levels. They held his 3pm dose and we hope to get this down. May be one of the reasons he is so sleepy today.


I have also been infected by his little bug.....better now and back with the real world!! I was bonding with the basement for the last five days. Paul was bonding upstairs trying to take care of Elle and tend to Kaden at the hospital. Nana, Papa and Grandpa also contracted that lovely little bug!! They are still recovering. Thanks to all the helpers we had this week. Your willingness to help is much appreciated !! :)


Elle enjoyed a great week at school. Most days this week she also enjoyed 2 1/2 hour naps at school!! She got her 'report card' today. We are so proud of her. She is learning to communicate through a 'big mac'. That is a large button that you can record stuff on and then she can communicate in the activities they are doing in class. Her classmates enjoy helping her. She is also spending lots of time in her stander which she absolutely loves. We also sent her walker to school which she scoots around in in gym class. She is a beautiful little girl with a happy personality....thankfully!!!

We have a nurse for Elle tomorrow afternoon so Paul and I will go spend time together at the hospital and snuggle our other little cutie!! Hope to report good things tomorrow about all.