The past week.....

We have not been up to much. Still waiting to have our flooring completed which should be this Thursday!!!! Kaden is still working on his last med change before having another level done. Elle is doing well. Our respite is still very none existent. This week Kaden had his nurse on Monday and Elle was to have her Health care Aide on Wednesday but she was sick and then Saturday was her regular evening shift but when the HCA came she was 'starting' to feel better so Paul and I decided that she shouldn't stay. Kaden's Saturday night shift......UNFILLED!!! We had made a call to the respite office this week and they were going to look into Kaden's shift.......still no call back....Honestly people have no clue. They (being doctors, specialist, respite office ect.....) always say how important it is that parents get out on their own yet it never seems to be a priority for them to try and fill it.



This weekend my sister moved so mom, dad and Paul were busy helping her and Jackie with the move. They are slowly getting settled. Tonight we were at mom and dads for dinner and now at 11:25 & I am almost done with Kaden's feed and then off to bed!!



Elle has an orthopedics appointment this week to get some ankle supports to help her stand better!! We have been waiting for these for awhile so we hope they will work for her. Kaden has his Port-a-cath flush ( his IV that is surgically placed under the skin just below his colar bone) This IV has to be flushed with heparin once a month if its not being used to keep the line open.



Well that's all for now!!!

There is just one of the many, many, many smiles that our beautiful little girl gives us everyday.....she is so amazing.....