We had Kaden at the hospital this week for a blood level for his Phenobarb. Of course they call back saying that his level is now 51!!!!! This is very confusing for us as I have just finished decreasing him two times......So, we are now in the process of decreasing him another couple times and then take him back for another level in two weeks.....He is a bit more sleepy and 'dopey' at times. I would love to see what he could be like without that nasty drug. They say its one of the worst ones in regards to alertness and really decreases a persons ability to function. Therapeutic levels are more like 15-30 and over 40 can be toxic to your body. At 51 no wonder he is sleepy! Other than that he has had many smiles and some wonderful giggles.
Elle is sweet and adorable as usual.
We were at the neighbors for dinner tonight. Nice to get out and have a change of scenery.
Paul leaves for Atlanta tomorrow for work and will return on Wednesday afternoon....
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This blog is about our children Elle and Kaden who mean the world to us. They have had to face severe health related issues that many children or parent would run scared from.....we love them and will be there for them through all challenges that come their/our way.....
1 comment:
Sorry that Paul has to be away for a few days. I am always excited to spend that time with you and our precious grandkids. I am usually there most of the time anyway, but, it is nice to be there when they go to sleep and wake up. I feel so blessed to spend so much time with you and them. We think you and Paul are wonderful parents, Elle & Kaden aren't what you would call lucky in a lot of respects, but, they sure are when it comes to who they have for parents. Bless all of you.
Mom (Nana)
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