Well, we have not dropped off the face of the earth. Elle's cold didn't amount to much but did miss some school again....she is much better now and hope that she can get back to school and not catch anything else. She managed to go for three days this week so that is good. She did not go Thursday or today due to some issues we have been having in regards to a doctors order to not have her monitored at school while sleeping. We only found this out on Wednesday but apparently everyone else knew about it but us......needless to say we are NOT IMPRESSED. We are upset being the last to know of such a decision without us being consulted. We are the parents and people seem to be forgetting that. We are caring for her and all we want is for her to be safe. Anyways after a short conversation with a couple people she will be returning to school with her monitor for the time being while we sort this mess out. I tell ya its just one fight after another and it sure is frustrating. Sure is sad how we have to fight for every little thing.

Kaden, he is doing well. We have taken him a couple time to get blood levels and we have changed his Phenobarb dose a couple of times. It has come down alittle so that's good. We will wait till Monday to see if the Neurologist wants another decrease. Other than that he is happy, rolling, hanging in his jolly jumper and we are working to get him sitting on his own.....

We have our first 'night out' Saturday night!!!!!!!!!!!!!!! We have not gone out in over nine months.....What do people do on a 'night out'.....