Elle is still at home recovering from her cold. Her chest is not too bad today and she has had some strong coughs. She stayed home tonight with daddy while I went to the hospital. We are officially down a nurse for Elle as one of them was just not working out.....long story.....some may have heard it. Anyways, Sharon the other nurse is going to do full-time for the next six weeks and then we will see what wonderful plan Homecare has up their sleeve!!
Kaden had a great day and evening!! He was VERY happy again today. He had his port-a-cath locked yesterday cause the IV fluids running through it were giving him an extra 70ish ml which could be causing his low level of Ketones. His phenobarb level was 41 today!!!!! WOW!!! That is very high. They consider 40 to be toxic!! Never the less it doesn't seem to make him sleepy at all so that's good.
He had some visitors today!!! Grandma Remillard and Auntie Joy were there in the afternoon for a while bringing gifts of new blankets!!! He was playing peek-a-boo with them and laughing!! So cute!! Tonight Nana came to visit and we had a mini photo shot.....I will post some pictures tomorrow once I figure out what I have done to the camera......boo technology.....
Tuesday, October 21, 2008
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