No worries.....

After a conversation with Kaden (and Elle's) pediatrician Kaden will not be coming home today. The residents at the hospital miss understood what was happening. His doctor was just wanting to "revisit" what goals Kaden must meet before going home. She had never said he was going home. We thought it was out of character for her to just all of a sudden say he was going home. We think our pediatrician is great. She is very attentive to Kaden and Elle's needs and always has their best interests in mind. She sees Kaden every morning and always calls us to make sure we are all on the same page. We trust her completely!! The Neurologist on for the week also said last night that Kaden was not ready to go home till he was a bit more stable on his diet. The goal is to get his ketones to be 12-16 but if we could get them to be 8ish consistently then he could come home and we would take it from there. He is still having his blood sugar tested every 4 hours and we may have to learn how to do that once he comes home depending on him at the time of discharge. That's what every mother wants to do.....poke your baby....make him bleed.....he is actually so use to it he doesn't even cry anymore!! He also got his flu shot yesterday. (didn't cry with that one either!!) I guess that means the 3 of us are due for ours too.

Today he had his port-a-cath changed. The removal of the tape was of course the worst part. He cried like crazy while they pulled that off and then when they took the IV out and put a new one in he didn't make a peep!!!!

Elle is much better today. Chest is clear and way less coughing. She hasn't gone to school this week as we are trying to give her a rest in hopes that these pneumonia's will stop reoccurring. From the first day home from the hospital she has not needed oxygen which makes us very happy.

Just a note that while at the hospital tonight I checked his ketones and they were 16!!!!!!!WOW!! They have never been that!! Tonight he was good. He was happy and smiling as usual. He is in constant motion and is better at sitting with support. He is so cute sitting there looking around. Anyways, can't wait to head to the hospital tomorrow and squeeze cotton balls!!