Sunday!

Well, Elle is still sleeping. She has officially been sleeping for 4 days straight! She is not going to want to sleep for a month after this....They are still not feeding her so that we can give her stomach a rest. She did however open her eyes today for about 5 minutes and give a couple of smiles!! She has a bit more color in her face today.

Kaden was smacking his little lips today and a bit in his own little world. He is still smiling alot and playing. Tonight he was soooooo cute. I would say to him "Kaden" or "you lips are peeling" and he would just laugh. He has a bit of a chest infection so he is on antibiotics but by looking at him you would never know. His blood sugar was 2.8 today and they have adjusted his diet (carbohydrate portion) in hopes that we can get his blood sugar more steady. On the weekend it was very low and he had to have some apple juice to get his sugar up.

Both of them were sleeping when we left. I hate leaving them when they are still awake.

Visitors we had this weekend:

Saturday: Both Grandpa and Papa

Sunday: Nana came for a couple hours. In the evening Nana,

Papa and a good friend Jolene (thanks Jolene it was so

nice you could take time out of your insane schedule to

see us!!)

Just found out that our nurse for tomorrow is not coming.....didn't need her tomorrow anyways. Hope that she is not sick with what we all had/have. Not sure what the rest of the week is going to look like......

Another day at Emergency.....

Just a quick note......Paul is sick with that GI virus and Elle is sick too.....My mom, dad and I spent the day at emergency with Elle as she is very sick. She has been sleeping for over three days, VERY lethargic, and a bit dehydrated. They are giving her IV fluids and she was admitted to CH4 tonight. She is in the same room as Kaden (monitored room). I will try to write more tomorrow but right now I am heading to bed.....VERY tired!!!!!

Elle is sick.....

Well, we thought we were all good......and sure enough I just get to the hospital and Paul is calling telling me Elle needs to be picked up as she is sick. She is pale, tired and pooping like crazy!!!! In order to make sure she is not dehydrated we are giving her pedialyte along with 1/2 her feed. She has been sleeping all day. Just opens her eyes to poop and get changed....My hands are sooooo dry from washing them every five minutes.....I don't want to get this again!! Paul went to Elle's parent/teacher today. She is doing very well and they are very happy with the progress she is making. They have lots of goal they are working on with her and she is enjoying attempting them. They also are really enjoying Sharon her nurse. We also think she is amazing and are lucky to have someone like her caring for Elle.

Kaden had a decent day. Auntie Lori spent the day with him. She hasn't seen him in over a week and was really looking forward to see him. He had 2 needles today. One was for the flu and the other was for RSV (a really bad cold that babies can get) He had his oxygen therapy (on his butt) and music therapy......now there's an interesting combo!!!! He totally enjoys the music therapist. I only saw him for 5 minutes today so I am looking forward to tomorrow when I can see him. Paul is there tonight.

Cold outside....burrrrrrrr.......

Busy day today. I had to take the scale that we use to measure Kaden's formula to get it checked and it turned out it was off just a little bit. They fixed that and then off to the hospital to meet with the dietitian to go over how to measure his formula with the scale. Then we had a play, butt change, oxygen therapy on butt, another butt change, more playing, and then off to sleep, more playing and then a feed......I had to leave today at 3:30 to get back for Elle and he was still awake....I hate leaving him while he is awake...:( His Phenobarbital blood level today was 40. They did a ketone blood level which was 5 and that is very good. Shows that his body is in a ketotic state and that is where we want him. His urine ketones still only show between 4 & 8 but that isn't bad. His blood sugar however is low therefore we have to change his feeds to 5 times a day. He was on 4 times and that worked much better in that the afternoon was a bit more flexible for going out but I guess my kids don't want us to have a life.....I should be use to that by now!!! Guess I will just have to do some tube feeding while shopping!!!! OH!! He also enjoyed the music therapist this afternoon. She came and sang to him for awhile...it was so cute cause he was smiling at her looking at her out of the corner of his eyes.....flirting with her......He was awake tonight and had a few visitors.....Angel one of the nurses from PSCU. She took care of Elle in PSCU (and Kaden) when she was there for 9 months.....we think she is the greatest!!! She really is an angel. Jackie on of the nurses aids brought him a bag of goodies....she is a real sweet heart. She has given Elle blankets and stuff before. Its nice to have those kind of people in our lives.

Elle had a good sleep last night so she was wake and ready for school today. She did nap at school but nothing major. Was in her walker in gym class. Elle had a visit with her Auntie Lori tonight. Auntie Lori just got over a cold and was missing her Elle.

Tuesdays excitement......

Kaden was more alert today. Yesterday he was very sleepy. He has a wicked butt rash so he had a little 'oxygen therapy'.....which means we take his diaper off and he lays on the bed with a plastic cup that has the oxygen tube stuck through it blowing on his cute little butt!!!! He was so cute laying there. He was rolling onto his side trying to get onto his tummy.....too cute......Paul was with Kaden tonight and he slept the whole time except for about 10 minutes. Just enough time to change his diaper and give a few smiles. He has a 'float nurse' tonight till 11:30.....needless to say she had absolutely no idea what to do. Not too familiar with g-tubes (feed tubes) so Paul had to tell her she needed to clamp it between meds so that the med that was just given doesn't come shooting back out.....AND.....he has a neighbour that is on isolation (you have to gown,glove & mask) before going in......she didn't know anything about being in isolation.....ahhhhhh!!!!!! Kaden better not get sick......anyways we made a call to the charge nurse and he is going to clarify with her what it means.....brutal!!!!! They will be taking a Phenobarbital blood level tomorrow morning along with a blood ketone level and a glucose blood level. His blood sugar has been a bit low so they want to check that. After they check that they will be taking the IV out as its just a source of infection and if its not being used I would rather it be taken out.

Elle is good today. She had a great sleep last night and I had to wake her to get ready for school. She had a nap at school and enjoyed 'special music'!! She loves music. I stayed home with her tonight as I have been at the hospital alot cause we have had extra nursing for her. She had a nice bath and alot of kisses and snuggles.

The above picture is of Elle in the walking system that Paul and my dad made for her to help her learn to walk......

Monday!!

Last night before leaving the hospital Kaden had all his 9pm medication and shortly after that he threw EVERYTHING up.......I got him changed, and cleaned up and soon after that he fell asleep and Paul and I left. Elle was still awake when we got home so mommy got some snuggles before she fell asleep. She was up this morning at 6:10am!! Someones having a nap a school today!! I am busy cleaning up Kaden's room as its gotten out of control and I think its giving off a vibe of we don't want him home so I thought it would be a good idea to get it cleaned up and ready for him when he is ready to come home again!!!!!

Hanging out with our guy...

These were taken Saturday afternoon.....a good day!!!!!!